Ten year old Sajem was born with cleft lip. Most of his friends used to treat him badly for his look. Even eating and drinking any liquids it used to embarrass him very much, because the liquid used to slide over his lips, which was not a pleasant seen at all.
From his very early age Sajem had a regret, why God gave him the birth defect, cleft lip? His parents does hardly have any money to afford the food. Having a cleft lip surgery was beyond their dream. He used to think, if he did not had his cleft lip, he could be treated like any other kids in the family, in the school or in the playground. Some nights before going to sleep he used to be crying silently, wetting his pillow, wishing that he could look better. Now Sajem’s long time dream got true. Touching Souls International, a nonprofit organization had a free cleft lip camp in their area, Patgram, Rangpur, Bangladesh where along with 17 patients Sajem got his free cleft lip surgery. His long time dream of having a presentable look, came true.
Cleft lip and cleft palate is a major problem in developing countries like Bangladesh. The people with cleft lip and cleft palate are unable to eat or speak properly for which they have to face an isolated life filled with pain and shame for not being socially acceptable. Touching Souls International offers free cleft-lip and cleft palate surgeries for economically disadvantaged people of Bangladesh. Cleft lip operation gives the person a whole new start of life. Touching Souls International’s cleft lip project is dedicated to optimize the quality of life of individuals affected by facial birth defects.
Management of cleft lip/cleft palate involves more than surgical repair of the defect. Services of other professionals such as dentist,orthodontist, otolaryngologist, audiologist, and pediatrician are usually required to identify and treat the associated problems. In addition the care is provided by each specialist carefully timed and coordinated in an individualized overall treatment plan. Touching Souls International missions consist of volunteer medical teams who travel to different parts of Bangladesh where they are hosted by the local hospitals.
An international consortium of scientists, led by researchers at The Johns Hopkins University, has identified two genes that when altered are closely associated with cleft lip and/or cleft palate.
Cleft lip and cleft palate are among the world’s most common congenital malformations and occur in one in every 700 births. The finding is the result of the largest family-based, genomewide study of cleft lip and/or cleft palate conducted to date. The results were published online by the journal Nature Genetics.
“While these findings cannot yet be used to identify infants or families at immediate risk, they do open up important new areas of biological research into the causes of cleft lip and palate,” Terri H. Beaty, lead author on the study and a professor of epidemiology at the Johns Hopkins Bloomberg School of Public Health.said. “Fully understanding how several different genes can control risk to common human birth defects will create opportunities for more effective preventive measures in the future.” Until then many disadvantaged kids like Sajem has to wait and wish, some non profit organization like Touching Souls international can come forward to save them from the social mistreatment of being born with cleft lip and give them a look of their dream.